Center for Hospice Care Welcomes Partners

Center for Hospice Care and Hospice Foundation (CHC/HF) hosted the Palliative Care Association of Uganda (PCAU) on an exchange visit from October 24th – November 12th. Exchange visits are an important aspect of our partnership work; they provide an opportunity to learn and share, facilitating the deepening of CHC/HF and PCAU’s relationship. Connecting in-person is vital in building the strong relationships, and it offers staff a way to get directly involved in the partnership. In the community, hosting our partners helps promote awareness for hospice and palliative care, explore new relationships and collaborations and engage in strategic planning for our partnership activities. PCAU’s last visit was in 2018 when we celebrated 10 years of our partnership. Normally a team from PCAU visits every two years, but these visits have been on hiatus since the emergence of COVID-19 in 2020. Because of the unique, strong bond we have with PCAU staff, we stayed in touch virtually over the past several years. But there is nothing quite like an in-person meeting and conversation to catalyze our engagement to the next level.

CHC/HF hosted Mark Mwesiga, PCAU’s executive director, who has steered the organization successfully through the unprecedented and financially difficult times. In addition to the challenges of the pandemic, the global palliative care field has seen several long-standing funders of hospice and palliative care retract financial support across Africa. Mark has brought strategic vision and leadership to his role to navigate these challenges and bring PCAU to the national spotlight as a leader in palliative care.

Mark was joined on this visit by Joyce Zalwango, PCAU’s capacity building officer responsible for coordinating activities aimed at strengthening the development of palliative care work in Uganda. She works closely with Mark in advocating for palliative care and providing general support to all PCAU programs. This was Joyce’s first visit to the United States, and she couldn’t hide her excitement during her stay. She was eager to meet staff in person, visit new places and try new foods! While meeting with a group in the community, she told them: “getting a US visa is like a miracle. When I got the visa, I was excited and while the many stopover checks I encountered on my way worried me, somehow, I trusted I would make it to USA.”

In addition to the overall strengthening of our partnership, raising awareness and support for the partnership was central to the exchange visit. Other goals were to advance research collaborations, pursue some learning opportunities for Mark and Joyce and to strengthen engagement both internally with staff and externally with folks in our community. Mark and Joyce visited St. Joseph Regional Medical Center Hospital, LOGAN Community Resources, A Rosie Place, Indiana University of South Bend and University of Notre Dame, among others. As the partnership grows, the engagements and involvement of other stakeholders in each of our respective communities adds value to our partnership activities and helps set goals to achieve long-term and sustainable outcomes.

The Road to Hope program is one of our shared programs that touches many in our community. Ten years into the program, we support more than 60 vulnerable children who were caregivers for their dying parents with education and psychosocial support to help them grow into happy and productive members of society. During this visit, we held a strategic planning meeting for the RTH program. We reflected on the progress of the program and our vision as we move forward. Much has changed since we started ten years ago, and we want to ensure the program, which is central to PCAU’s work, is relevant and impactful. PCAU’s new strategic plan 2022 – 2026 recognizes that the RTH program is a significant part of their advocacy strategic objective – it is the program that connects PCAU with the grassroots community. In the World Health Organization’s (WHO) new conceptual developmental model for palliative care delivery, RTH is PCAU’s program that fits within the building block, “empowering people and communities.”

It is always exciting to host our colleagues from PCAU. Mark and Joyce were grateful for everyone they met and for the hospitality and love. They really felt welcomed and supported as colleagues. Mark emphasized that our work together, as CHC/HF and PCAU, has made a huge difference in Uganda: “Our vision is to make sure that palliative care reaches everybody in our country…Unlike other partnerships in Global Partner in Care, ours is a partnership with an entire country. You here are the greatest friends of Uganda as far as palliative care is concerned. Because we are the guys responsible for working with the Ministry of Health to take palliative care to every corner of Uganda.”

To express their gratitude, PCAU gifted several handcrafted wall hangings depicting scenes of homesteads in Uganda. Mark expressed PCAU’s hope that the gifts will serve as reminders of the impact the partnership has had on people and communities in Uganda. Mark also conveyed gratitude on behalf of all staff of PCAU, board members and members of PCAU. He shared that “for every little bit of success that we count for palliative care in Uganda, Center for Hospice Care has a share. It’s this friendship and partnership that motivates us.”

Next year will mark 15 years of the CHC/HF/PCAU partnership. To learn more, visit the partnership website: pcaupartnership.foundationforhospice.org.

See the entire Crossroads Issue 24