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Partnerships in Caring

Connections at Home and Abroad

As part of Global Partners in Care (formerly FHSSA) Partnership Initiative, Center for Hospice Care was linked with Palliative Care Association of Uganda (PCAU) in 2008.

Support for PCAU is multi-faceted -- the organization's National Coordinator, Rose Kiwanuka has made two visits to CHC to learn about our programming and through a grassroots effort, CHC employees have established an employee giving program, Uganda Impact Fund, that provides more than $8,000 in annual support. These funds and a grant from Hospice Foundation, enabled PCAU to move into its own safe, secure compound in the nation's capital, Kampala.

To learn more about the accomplishments of the partnership between CHC/Hospice Foundation and PCAU, as well as future initiatives and goals, view our 2015 Partnership Report.

Making Palliative Care Accessible to All in Uganda

For the 2014-2015 academic year, CHC and Hospice Foundation, through various grants and fundraising efforts, supported seven Ugandan students as they completed a one-year Clinical Palliative Care Course. Upon completion of the course, they will have leadership roles in the delivery of palliative care in their districts. For the 2015-16 year, which began in May, we will be sponsoring eight students.

Opportunities for Learning

We have also helped organize internships in Uganda for Notre Dame students in palliative care and spiritual care, thanks to the support of the Kellogg Institute for International Studies and the Ford Family Program. Hanna O’Brien, a College of Science Pre-Professional Studies and Anthropology double major at Notre Dame, was the first student to study in Uganda during the summer of 2010. She returned inthe following summer. These programs also helped fund spiritual care internships for Notre Dame Master of Divinity students Ben and Mary Ann Wilson in 2011.

In addition, Brianna Kunycky, working at Notre Dame’s Geospatial Analysis Laboratory under the direction of Dr. Dilkushi Pitts, created a new palliative care map that will depicted the geographic deployment of palliative care workers throughout Uganda. Her work helped identify coverage gaps and aided in prioritizing those areas of the country that most needed certified palliative care workers. View the map here.

In 2013, three Notre Dame Students, Gaby Austgen, Anna Heffron and Emmie Mediate, interned in Uganda. Each student was paired by PCAU with a member organization for their internships. While in Uganda, each blogged about their experiences.

Emmie Mediate returned to Uganda for a second year in 2014 to work on an extensive research project. The same year two other Notre Dame students, Cliff Arnold and Graham Englert, worked with PCAU.

As part of her program with the Eck Institute for Global Health, Brianna Wanless developed an mHealth pilot program that uses mobile phones to track and update palliative care throughout the country. Palliative care healthcare providers will provide PCAU with vital statistics such as the number of patients being cared for at various member locations as well as track morphine supplies. Intern Brian Vetter provided assistance for the program as well.

We invite you to learn more about internships in our community and in Uganda.

The Road to Hope

In 2013, a film crew from Hospice Foundation traveled to Africa to film our next documentary, Road to Hope, in Uganda, Kenya and South Sudan. Filming took place over a three and a half week period from late August through late September. Road to Hope explores the unique challenges of orphaned children after caring for their dying parents in poverty-stricken areas of Sub-Saharan Africa. The film tells their stories through the lens of caring and supportive people who have emerged, often as unintentional shepherds, to offer love, guidance and support as the children seek to rebuild their lives. Currently on the film festival circuit, Road to Hope is garnering international recognition.

To learn more about the project, visit the Road to Hope website.

If you would like to support PCAU in their mission to bring palliative care to all of Uganda, donate here.

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